Your energy and drive for answers will keep us moving fast to cure iSGS.

Jun 28, 2018

478

Your energy and drive for answers will keep us moving fast to cure iSGS. 
Thanks to everyone's support, you commitment will help us cure this disease.

BruceKeter, Sara, and 40 others like this.

7 comments

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James Nichols

Thank you for getting this project going. My wife is struggling from iSGS and we are looking for answers. It seems like there are not many good answers at the moment.

Aug 01, 20180

Julie Dickinson Backer

Keep working so hard. We are desperate for answers! Let’s find a cure! Thank you! Julie

Jun 29, 20180

Pat Wenborn Backer

Thanks. Let's hope we find a cure eventually!

Jun 29, 20180

Cynthia ReberBacker

Heartfelt thanks to you and your team.

Jun 28, 20180

Erica DobsonBacker

I can’t thank you enough for continuing to research towards hopefully a cure for this horrid disease x

Jun 28, 20180

Sharon BryantBacker

Thank you Dr. Gelbard and team. This is so important and I look forward to a cure some day.

Jun 28, 20180

Holly GrealisBacker

Thank-you Dr Gelbard and to your research team for your dedication to find a cure to ISS.

Jun 28, 20180

About This Project

NoAAC Longitudinal Registry of Treatment Outcomes in iSGS

North American Airway Collaborative

Idiopathic subglottic stenosis (iSGS) is a rare and life-threatening disease involving airway obstruction. Given its rarity, a number of options for treatment have been developed. The proposed study will continue and extend the PCORI-funded study in iSGS conducted by the North American Airway Collaborative (NoAAC) to collect objective long-term data on outcomes and side effects. This information is critical to help patients decide on the best treatment.