About This Project
The Charlotte and Gwenyth Gray Foundation
In March of this year, both of our daughters, Charlotte and Gwenyth, were diagnosed with Late Infantile NCL Batten Disease CLN6. Because so few suffer from this presently incurable and fatal disease, there has been limited research, focus, and funding. We would like to raise funds to accelerate research in three promising treatment options gene therapy, cellular therapy, and small molecular therapy.