Charlotte and Gwenyth Gray Foundation

Charlotte and Gwenyth Gray Foundation

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Published on Apr 28, 2016

We have some amazing news to share!

Anyone who doesn't believe in miracles should fly to Ohio… Just over a year ago, Gordon and Kristen Gray were told that both of their daughters wouldn't live to become teenagers. Th...

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Published on Oct 12, 2015

​Update from The Charlotte and Gwenyth Gray Foundation – 10/1/15

To Our Incredible Network of Support,We cannot start this update without expressing our most sincere gratitude for the outpouring of support we’ve received since launching just over three months ag...

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Published on Aug 06, 2015

Please Help!

Hi All,The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease has been invited to participate in the Microsoft #UpgradeYourWorld Contest. Microsoft has identified nine global nonprofits t...

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Published on Jul 07, 2015

Gordon featured on The Rich Eisen Show

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Published on Jun 16, 2015

In the News

We've been featured in the news and as more press coverage comes in, we'll update you with a complete list here:June 16, 2015PARENTING MAGAZINE Parents Race Against Time so Save Bot...

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Published on Jun 16, 2015

Frequently Asked Questions about Batten Disease

What is Batten disease? Batten disease is a rare genetically inherited disorder which belongs to a group of progressive degenerative neurometabolic disorders, known as the neuronal ...

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Published on Jun 16, 2015

Our Story

Our daughter, Charlotte Laurel Gray was born on December 5, 2010. As parents, we were anxiously awaiting her arrival and once she appeared, our hearts were full. Like all new parent...

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Thank you Mona!
Sep 03, 2015
Finding a Cure for Batten Disease
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Thank you so much for your support-every little bit helps! Good to hear from you and we hope you are doing well!!
Jul 16, 2015
Finding a Cure for Batten Disease
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Thank you Amanda!
Jul 16, 2015
Finding a Cure for Batten Disease
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Thank you for your comments. We are looking at many treatment options right now and the NZ research is only one of those treatments-he happens to have the most success thus far with the girls' particular mutation so that was where we started and what has given us hope to keep fighting.
Jul 16, 2015
Finding a Cure for Batten Disease
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Yes, we have heard a lot about CRISPR. Thanks for your support.
Jul 16, 2015
Finding a Cure for Batten Disease
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IT is the CLN6 gene-yes, that is how they were diagnosed. We don't have any family history on either side so we are testing extended family to see if we can find out more.
Jul 16, 2015
Finding a Cure for Batten Disease
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