NoAAC Longitudinal Registry of Treatment Outcomes in iSGS

Discussion

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Holly GrealisBacker

Yay!!! Thanks to everyone that donated so that we may breathe easier when a cure is found!

Jul 27, 20181

Mary N. ClarkBacker

Congratulations! Exciting news!!!!

Jul 27, 20181

Suze Gingery Backer

I was glad to donate for the sake of my daughter, and all who suffer with this condition.

Jul 27, 20181

Maayke LodewijksBacker

Great news! Thankd to everyone who donated... You give us air for breathing

Jul 27, 20181

Patty Jackson MelgarejoBacker

I'm hoping a cure will be found soon

Jul 24, 20181

Linda StellickBacker

Having suffered with ISS over a decade, I'm hoping for more doctors knowing about it. Supporting you to work towards a cure for all - a wishing it could be prevented.

Jul 11, 20181

Pat Wenborn Backer

Thanks to everyone. We did it! Great!

Jun 29, 20181

Monica Lopez MurphyBacker

Thanks everyone. We did it!

Jun 28, 20181

Suze Gingery Backer

I donated on behalf of my daughter, and all of you whose lives are so affected by this. So glad the project is fully funded now!🙂

Jun 28, 20182

Kimberley O'NeilBacker

Yes, we did it! Thanks to Lisa Heffernon for putting us over the top today.

Jun 28, 20182

Heather Bohn Backer

We did it! Awesome. Here’s to more information, better treatments, and a cure!

Jun 28, 20180

Eveliene WardBacker

Catherine and everyone involved, you’re saving lives already. Hopefully you get to continue your good work with this project.

Jun 28, 20180

Melanie MorrisBacker

Best of luck. This is needed.

Jun 28, 20180

Julie Dickinson Backer

I hope we get all the funding! We need it. Julie

Jun 28, 20180

Ray and Donna SalzwedelBacker

Our daughter suffers from this condition and we want to contribute to the search for a cure!! Perhaps this collaboration will provide that.

Jun 27, 20180

mary linehanBacker

Lorenzians Represent!@!!

Jun 26, 20181

Michele HochstatterBacker

Just increased pledge cause I got some family members involved! ❤

Jun 25, 20180

Dawn sullivanBacker

How do I make a donation on here

Jun 23, 20180

Carolyn Fritzsch Backer

Thank you to the researchers! I’ve had 7 procedures in 12 years to treat the condition.

Jun 23, 20180

Lisa HaenneltBacker

Thank you all for doing this project. I look forward to reading what you find.

Jun 19, 20180

Emily KatherineBacker

I’ve personally spoken to Catherine and Cheryl. Thank you!! This team is amazing and what we need to continue to push forward in finding answers to this terrible disease.

Jun 18, 20180

Marina En Rober DudinkBacker

I hope the goal is reached soon! I have growing scar tissue back again :( and many other people are struggling!

Jun 18, 20180

Alexander GelbardResearcher

Thanks to all for your energy and contributions. This project will continue to provide clear information on how well treatments work, and enhance the infrastructure to test new treatments. Moving closer to a cure wouldn't be possible without your support.

Jun 12, 20183

Cara HoweBacker

Thank you for all the work that you do to help us as patients! We wouldn’t be here without amazing surgeons like all of you who are willing to go the extra mile for us. Am I correct in thinking that new hospitals might be able to take part in the next phase of the study?

Jun 18, 20181

Sharon BryantBacker

Thank you to everyone who's worked so hard on this project. I'm looking forward to a cure.

Jun 12, 20181

Pia Ekman

Hello from Sweden! I had my ISS since 2009. 6 Surgery’s & I’m very greatful for what you do.

Jun 12, 20180

Stacy Grissom Backer

Thanks for the work you do! Those of us suffering from this are grateful for it.

Jun 11, 20180