The Social and Professional Impact of Facial Paralysis

$1,730
Raised of $5,690 Goal
31%
Ended on 4/19/16
Campaign Ended
  • $1,730
    pledged
  • 31%
    funded
  • Finished
    on 4/19/16

About This Project

The purpose of this project is to gain a broader understanding of the social and professional impact of facial paralysis. In-depth interviews with people with facial paralysis and family members are on-going. Frankly, I have taken on this project because it happened to me. After contracting Bell’s Palsy, I am left with synkinesis and permanent paralysis, there is little known about how this impacts mental health, communication, and professional success.

Ask the Scientists

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What is the context of this research?

In 2009, I contracted Bell's Palsy, facial paralysis that strikes about 6% of the population. Of that 6%, a small percentage develop a condition called synkinesis in which the face is rewired "wrong" resulting in paralysis, not because you can't move, but because too much is moving. Very little is known about the social and professional impact of acquired facial paralysis. Research on those with congenital facial paralysis suggests (Bogart, 2014) suggests social strain and negative experiences. Soon to be published work by Paula Niedenthal and Jackie Diels suggests significant disruption to communication and sense of self.

What is the significance of this project?

This project strives to make contributions in a number of areas.

Sociological Theory- The experience of individuals who experience a disruption to the self in the form of facial paralysis provides an opportunity to add nuance and insight to theories of embodiment, self and communication.

Communication and Presentation of Self-

Mental Health Protocols- Thus far no subjects report mental health care being a part of the standard of care for a condition that has a significant impact on sense of self.

Differential Treatment- No standard of care, or coverage exists. Understanding what is most essential to restoring the ability of individuals to operate in the social world is critical.

What are the goals of the project?

The goal of this project is to gain an understanding of the social and professional impact of facial paralysis. Currently no research exists on this topic. This project would inform future research.

Budget

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I have already conducted almost 100 interviews with subjects and their families. Transcription takes approximately 1-3 hours per hour of tape, and I have almost 150 hours of recordings requiring transcription. In addition, it is important that a wider range of subjects is contacted. I currently have a shortage of nonwhite subjects and male subjects. The student assistant would target subjects t to increase representation in the sample. In addition, my University has supplied a lab in which my research assistants can work, however, the computer provided cannot handle the files we are using and is incompatible with the software to which I have access. The funds would allow me to:

1) Provide an efficient computer and software for my research assistant

2) Provide for targeted recruitment of subjects necessary for a more diverse sample by a trained student research assistant.

3) Provide transcription of the majority of interviews conducted.

4) Provide software for data analysis.

Meet the Team

Faye Linda Wachs
Faye Linda Wachs
Professor of Sociology
Sofia Pedroza
Sofia Pedroza
Research Assistant

Team Bio

The team consists of myself and my research assistant, Sofia Pedroza. Sofia walked into my office as a sophomore and asked if she could gain original research experience as she was planning to attend graduate school. Her contributions have strengthened the project immeasurably. This funding would allow her to spend the summer completing transcription, and training her replacement, prior to her leaving as she was recently accepted to graduate school for the fall.

Faye Linda Wachs

Faye Linda Wachs- is a professor of Sociology in the Department of Psychology & Sociology at California State Polytechnic University, Pomona. She has also served as a visiting assistant professor at the University of North Florida, Loyola Marymount and the University of California, Berkeley. Dr. Wachs received her Phd. in Sociology from the University of Southern California, along with a graduate certificate in gender studies. Dr. Wachs’ published work focuses on gender equity, health, fitness, media, sport, sexuality and consumerism. Her book, Body Panic: Gender, Health and the Selling of Fitness, co-authored with Shari Dworkin was the recipient of the North American Society for Sport Sociology (NASSS) Distinguished Book Award in 2010. She is the California State Polytechnic University, Pomona 2012 Provost Award Winner for Distinguished Service as well as the 2009-10 Cal Poly Pomona College of Letters, Arts and Social Sciences Outstanding Advisor. Dr. Wachs is the former president of an international academic organization, the North American Society for Sport Sociology, and also served as secretary for the same organization. She has also held committee appointments in the Pacific Sociological Association, and in Alpha Kappa Delta, the international sociological honor society.

Dr. Wachs is a mixed methodologist, with experience with survey research, focus groups, in-depth interviewing, content and textual analysis, and participant-observation.

Dr. Wachs was the Co-PI on a NSF GSE/RES Grant that examined the effects of stereotype threat on girls’ math performance. She was also the primary grant writer of, and faculty liaison for, a Department of Education Carol M. White Physical Education Grant. This grant provided teacher training, equipment, and afterschool physical education programs in Pomona.

In her spare time, Dr. Wachs enjoys hiking, running, biking, sailing, knitting/crocheting/sewing and spending time with her family and dogs.

Sofia Pedroza

Sofi is an outstanding student who has been on the President’s list each quarter. Sofi has also served as a department peer mentor, assisting other students succeed in our program and working to create beneficial workshops and panels. Sofia is a member of the Kellogg Honors College, she formerly served as an Sociology Honor Society (Alpha Kappa Delta -AKD) board member, works with orientation services as a Student Leader, volunteers at the Violence Prevention and Women’s Resource Center and with the David and Margaret Foster Family Agency, building bridges to the community and gaining experience in grant writing. She is the recipient of the Forester’s Scholarship for community service, The Ernest Chioffe Scholarship given by the Department of Psychology and Sociology at CPP, The Lowell Overton Scholarship also awarded by the Department of Psychology and Sociology at CPP, and an Alpha Lambda Scholarship for dedication to academic and career goals. She is also the winner of the Oral Presentation Award at the 3rd Annual CPP Research Awards for the Behavioral and Social Sciences. Sofia will be graduating in June and has been accepted to graduate school in the Fall.


Project Backers

  • 22Backers
  • 31%Funded
  • $1,730Total Donations
  • $78.64Average Donation
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