The "iSGS 1000" created thru the North American Airway Collaborative's PCORI-funded study has exponentially accelerated the sea...

Jun 12, 2018

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Thanks to your energy and support we have built a 1000 patient cohort of iSGS patients.  
The "iSGS 1000" created thru the North American Airway Collaborative's PCORI-funded study has exponentially accelerated the search for a cure.  Large prospective cohorts (groups) of patients with a specific disease are critical to assess genetic and environmental factors reliably.   This large cohort also allows longitudinal study of  disease (ie following patients for a long time).  This time is essential to really know how well different treatments work because outcomes can span several years.

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About This Project

NoAAC Longitudinal Registry of Treatment Outcomes in iSGS

North American Airway Collaborative

Idiopathic subglottic stenosis (iSGS) is a rare and life-threatening disease involving airway obstruction. Given its rarity, a number of options for treatment have been developed. The proposed study will continue and extend the PCORI-funded study in iSGS conducted by the North American Airway Collaborative (NoAAC) to collect objective long-term data on outcomes and side effects. This information is critical to help patients decide on the best treatment.