Robin Lynn Treptow

Ever since I watched professionals and family members mourn the birth of my son—who has a disability-related medical diagnosis—I have set my mind to rooting out the social basis for why persons with this disorder (Trisomy 21) are seen as less capable than others. I even re-named the disorder’s informal name (i.e., Double Scoop vs. Down’s Syndrome) because I felt so strongly that its poorer-learning outcomes resulted from widespread social rejection—which muted chances to absorb knowledge readily (see Borthwick, 1996).

As a clinical psychologist who worked with children I was already informed about social processes: ideas like “self-fulfilling prophecy” where what others (e.g., teachers) think drives how much a child learns and “learned helplessness” where no one thinks a problem can be solved so everyone gives up and no longer tries to solve it. But it was beyond my skill to make sense of how deep the unspoken biases against a person with my son’s disorder actually were. As he grew, I decided to build my research skills and begin to tease apart the question. I am now working on a study of doctors’ unspoken negative ideas about newborn infants with medical conditions expected to result in learning or other problems.

As to my scholarly background, I have a doctorate in clinical psychology from the University of Nebraska-Lincoln (1999). In 1990 I trained on a Federal infant-toddler early intervention grant at the University of Nebraska Medical Center. I have assessed and treated very young children—including those with special needs. Last year I presented work related to diagnosis-based bias at meetings for the World Association for Infant Mental Health (Prague; May-June) and the International School Psychology Association (Amsterdam; July).

Joy V. Browne

Joy Browne is an Infant Mental Health Professional and Clinical Nurse Specialist who has over 35 years experience with medically fragile babies both in hospital intensive care and as they transition to their community home. Her work has focused on supporting families in understanding and supporting their newborns and young infants, especially those who have eating, crying and sleeping problems early on. She has worked with many of these children and their families when resulting behavioral and emotional challenges become apparent and families are at a loss for how to manage their emerging mental health concerns. In her work with professionals in the community, she collected data that showed a lack of educational and assessment resources to work with these babies and their parents. So, she developed a training program that includes how best to assess and provide intervention strategies that meet the needs of this particular population. Along with the training program, Joy and her colleagues developed the Babies Adaptive Behavior Inventory (BABI) to help professionals know best how to support newborns and young infants early on. Initial validation has begun, but the next step needs financial support for the volunteers who are wilingly providing their time and energy to get the BABI birthed!